May 12 is International Fibromyalgia Awareness Day! In addition to my lupus, I also have fibromyalgia. One of my best friends was recently diagnosed with it as well. I love her. I feel that although pain and fibro is something I know a bit about, I can not help her acceptance of this diagnosis. I…
People very often don’t understand what it’s like to live with Fibromyalgia, and other invisible chronic illnesses that cause chronic pain. They’ve experienced regular pain in their lives- pretty much everyone has, in some way- but, they’ve never had to deal with long-lasting pain. I actually attempted to look up the “official” labels for the…
It’s not at all unusual for fibromyalgia to be misdiagnosed as another condition and vice versa, as symptoms of fibromyalgia are similar to that of other illnesses. Also, there are no lab tests to definitively identify fibromyalgia. Here are seven conditions commonly mistaken for fibromyalgia. Chronic Fatigue Syndrome ME/CFS is the condition that is probably…
Patrick spent most of the day in the bed because he was often exhausted. He’s always tired, and all the time he hurts. Patrick Schutz from Neuchâtel has fibromyalgia – an invisible condition that is not recognized by disability insurance. Pain, pain, nothing but pain: Patrick Schuts (41) from Neuchâtel has always the feeling that…
Artist Anjie Mailey shares her experience with the misunderstood chronic condition that causes pain for millions Fibromyalgia is a chronic long-term condition which causes pain for millions but is poorly recognised and under-researched, says Jo Waters Kirsty Young’s decision to take a break from Desert Island Discs last summer because of her struggle with…
Have you ever been asked, “So, what’s the deal with fibromyalgia? What is fibromyalgia, really?” When you’re asked, what do you say? Do you have a clear, concise, spiel that gives the facts or a printed list with need-to-know bullet points? Nope, I don’t either. Sometimes when I’m asked, I’m in the middle of doing something…
Le problème avec la fibromyalgie est que chaque jour c’est quelque chose de nouveau. Mon quotidien est une bataille constante sur une piste tout terrain; plein de dangers, aucune idée où je vais ou ce que je vais frapper ensuite. Je suis dans un rond-point infini de symptômes. Chaque obstacle est calculé pour éviter les risques, mais le résultat n’est jamais…
De strijd met fibromyalgie is dat het elke dag iets nieuws is. Mijn dagelijkse is een constante strijd op een all-terrain baan; vol gevaren, geen idee waar ik naartoe ga of wat ik de volgende zal raken. Ik zit in een oneindige rotonde van symptomen. Elk obstakel wordt berekend om risico te vermijden, maar de uitkomst is nooit voorspelbaar, hoe hard…
The struggle with fibromyalgia is that every day it’s something new. My everyday is a constant battle on an all-terrain track; full of dangers, no idea where I’m going or what I’ll hit next. I’m in an infinity roundabout of symptoms. Every obstacle is calculated to avoid risk but the outcome is never predictable no matter how…