Nick Demos, producer and director of the Tony Award, has a mission: he wants to make the diagnosis, the treatment and the consequences of the awareness of fibromyalgia in the world. He is personally affected by fibromyalgia: his mother, a woman with fibromyalgia, found a lack of pain relief, social consequences and some responses. He is on a mission to discover the experiences of other people living with fibromyalgia, including people who generally do not think of a chronic pain syndrome, including a young athlete. According to him, it is important to take out fibromyalgia with the hope of obtaining answers.
“We asked all the people interviewed for this film:” What is fibromyalgia? “The answer is never consistent, and for those who do not, there is a lack of urgency to find the answer. “
According to Demos, his findings so far indicate that people with fibromyalgia are subject to a broken health system and demographic data such as access to education and socioeconomic factors play a role, according to the National Pain Report. In his film, he talks to people from different backgrounds, ethnicities and socioeconomic groups, but finds common themes for all participants, he says.
“The diseases that nobody sees, even more diseases that can cause or be triggered by all these disorders that are really fatal”. Fibromyalgia still needs attention because it will not kill you in a technical sense. But the community will tell you how the fibromyalgia syndrome can get worse if they have not received empathy, life education and community support from all their deadly counterparts. It remains a controversial issue, although millions show that the disease is real and widespread.
The film is planned for 2017 and will be shown in different films next year, says Demos. So far, the film is entirely based on donations, mainly in patients with fibromyalgia or organized groups to educate people about fibromyalgia. The syndrome has been described as an “avoidance disease” as a body of chronic pain. It is characterized by chronic pain, the whole body, headache, sleep disorders and mood swings. The fatigue associated with fibromyalgia can be debilitating and leads to the difficulty of distinguishing chronic fatigue syndrome from fibromyalgia.
It is not a disease that causes physical or life-threatening deformities, although patients with fibromyalgia and other chronic pain disorders are more likely to commit suicide. People living with fibromyalgia describe as heavy rain: relationship problems, difficulties completing many jobs, financial instability and depressed mood. Although no one knows exactly what causes fibromyalgia, some researchers believe it is due to the amount of chemicals in the brain that can be determined genetically, because it seems to work in families. Women are more likely to be affected, although the syndrome can also affect men.
Although there are treatments available, such as the Lyrica and Cymbalta medications, no medication seems to be the answer for everyone and it can take a lot of time and effort to get rid of medications that work for patients and what doses are needed. Taking care of yourself is an important part of treating the symptoms of fibromyalgia, such as getting enough rest, eating nutritious foods and avoiding conditions that cause excessive stress or emotional energy. This can be a challenge for many people due to the obligations of life and the symptoms related to the disease itself.
Many people with the disorder feel isolated and misunderstood because the syndrome is invisible to others and is not understood by everyone, including many doctors. Demos hopes that his film can train people and inform people about this debilitating syndrome.