Fibromyalgia France is satisfied with the publication on the ameli.fr website of the “Assurance Maladie” of a “fibromyalgia card” allowing to have an official and reliable document on the syndrome.
After the publication in 2007 of the report of the National Academy of Medicine, in 2010 of the orientation report of the High Authority of Health, and pending the collective expertise of Inserm in progress (1st semester 2018) , Fibromyalgie France had expressed its wish to see formalized a document accessible to the general public towards which to direct patients, professionals and the media.
Indeed, because of the various contradictory and even alarmist information published on the internet, sources of anxiety for patients and skepticism for health professionals, medical experts and the public, for the Association, as for professionals and patients it was essential to have a reliable document with validated sources of widely available size.
Fibromyalgia France had expressed such a request in interviews for several years at the CNAMTs, the Directorate General of Health (two directorates of the Ministry of Health) and the HAS. In April 2017 we had confirmation that a “request for recommendations on the diagnosis and medical management of fibromyalgia syndrome” requested by the Health Insurance (in 2016 during the parliamentary inquiry) in the work program of the HAS 2017 was in the process of registration.
It is with satisfaction that the Association, which has been campaigning for 16 years for fair information on fibromyalgia, welcomes this publication on the Ameli.fr site of the Health Insurance which is divided into 4 parts: definition and causes, symptoms and diagnosis, treatment, living with fibromyalgia.
Thus this fibromyalgia record: https://www.ameli.fr/assure/sante/themes/fibromyalgie should also eventually allow our word to be credible with the “fibrosceptics” still too numerous, with the main aim of improving the quality of these painful chronic patients.
