If your loved one has fibromyalgia, it’s difficult to understand exactly what you’ve been through, unless you’ve experienced it yourself. It is likely that they will take much more time to sleep or rest on what they can and do not feel very often. Fibromyalgia can also be a person’s ability to work, household chores or even everyday things, such as bathing and eating.
If you have a spouse or other important support that makes the difference. It’s not like we’re in pain and exhausted. Change your life You are not the same physically or mentally (my fear), so many things are gone. I know that everyone feels the same.
If one person is a chronic disease, but the other is healthy, he can easily squeeze, even in the strongest relationships. While it may be harder to put the other in his place or find a balance in which one would like to feel like equal partners in the relationship, it is certainly not impossible and for many couples who face obstacles like it does a chronic illness in reality. strengthen your relationship and deepen your love for others.
We ask our community “Living with Fibromyalgia and Chronic Diseases” and “Living with Fibromyalgia” to share ways in which people can help their spouse or partner with fibromyalgia. If your loved one is affected by a chronic condition such as fibromyalgia, FC, the following ways will help you to better understand what you are experiencing and to give you some ideas of what you could do for them.
That’s what our community told us:
1. If you have a merger, hold it, do not cry and I know it’s there to help you.
2. Learn everything about him, what you can do. Be patient You can not understand what it is, but empathy and listening to your partner or spouse is very important. Unconditional love
3. Ask your partner to listen to you and read about people who also have fibromyalgia.
4. Avoid feeling guilty. To Trust and Love Be in bed and keep them, tell them that you are in it for a long time. And really!
5. Believe them first, be the second support, be always friendly, and thirdly, be worth your weight in the relationship in a practical way. They do not plan more than they do and that’s it, or together, to help them make the most of the journey. The more support you have, the faster you will find your own level of fitness and health, but it takes some time and you need to support it and reduce your physical and emotional burden as much as possible.
6. Show love and do not ask too many questions in a moment
7. Draw a good hot water shower, wash your hair, help, dry and brush your hair. Then only listening would be alright.
8. Be understanding, patient, do housework, understand when others question the truthfulness of the disease, remember that this disease is not a blame or punishment for you. Above all, do not stop loving the affected person.
9. It’s not exactly what your love should do for you when the roles are reversed.
Above all, be nice, loving, patient and funny
10. Do not blame anyone for sympathy and car maintenance. Sometimes I can only take care of myself … prepare dinner once a week. Vacuum cleaner or a clean shower. Remember that you can not get things out of him, or I can not, ten pounds and I’m almost exhausted
11. Do not just listen to what they say, but really listen!
12. Ask questions about various aspects of pain, bring small things to help with ice packs, medications, drinks, heating pads … and tell them how much you want to take. Understand your struggles, explore
13. fill gaps .. various forms of support where there are shortcomings. They are expressed in low expectations so that you know and understand, then you understand how it can be impossible to achieve. Be creative with pain relief or need to sleep on weekends, but I want to clarify, comb the beach, look for sea crystals, kayak though limited, volleyball (I can not) Personally, I think the movement is necessary to the tingling in the legs begin to cause pain. If it feels like a cinnamon stick, I pushed because I felt really good. I paint the seat and the windows that would lead to a normal healthy summer person. It will take two. I’m fine with her. This is an example of low expectations that continue to help
14. Never say he is lazy
15. Never cut them up by not feeling well or not being able to do things they could do before. Be understanding, even if you do not understand everything.
16. Keep them out of stressful situations. You can rest when you need it.
If you can live anywhere in the air pressure, there is not much pain EWH!
17. There is a wonderful book called Fibromyalgia for Mannequins. My son was reading, I do not know how many times. I really wanted to understand and help. My husband on the other left hand within a month.
18. If you tell me that I can feel the energy escapes me like blood being pulled through the needle, let me rest because the flu is causing pain and the brain’s fog is just around the corner.
19. Make sure that they understand that although they can not function as before, they continue to be a valued member of the family and not a burden.
20. Ask your partner what you want them to do and know that you want to help , in any way we can . Every little favor or help makes a difference to me, but they are all different. Some prefer the greatest possible independence. Many prefer to quit before automatically accepting what is desired or necessary. Offer to help or do things to help at home, without asking what was being sought and what was needed. Some of us feel guilty because they have burdened others.
It is a great relief for your spouse to assure your spouse that you are helping and that you do not mind helping and understanding in the best possible way. Personally, I like foot massage with lotion. Other areas are very sensitive to massage. I need help at home, with purchases etc. I need a quiet environment to rest.
What would help your spouse? What would help your spouse to feel a little better or more comfortable. I know you can not fix or change the disease, but you can offer help and comfort. People often offer unsolicited advice that makes things worse, sets unrealistic expectations, and puts more pressure on me. Then I can be more depressed or feel unnecessary guilt and shame.
I hope it helps.