People with fibromyalgia as those who have fibromyalgia understand them

A friend told me she had heard some of her colleague’s comments about another partner who had fainted because of the side effects of a new medication to treat her fibromyalgia   (post-orthostatic hypotension or dizziness after raised too quickly). .While they were carrying her on a stretcher, her words were:    “No one can be so sick.”

In what appeared to be a validation of my situation, a supervisor started 
his comments, informing me that he “knew a lot about my illness, because he and his wife had a close friend with her”.The remaining comments became a kick in the stomach, when he continued, “Then I can go ahead and rest. I found two students to replace them during the summer. “Recently, a person who worked on our patio resurrected the subject.The contractor told my husband that his wife was disabled. When my husband said that he understood because I am, the entrepreneur was quick to say, “Yes, but his wife is much better than mine.” My husband answered eloquently, “It seems to be able to deceive him easily.When I was frustrated and disappointed with the possibility of rain during the baseball game (now postponed), I wrote on Facebook about it, I just managed to get a member of my family, He also suffers from a chronic illness: illness reigns over your life.Not only was I stunned, but I also hoped that this parent, of all people, would understand me.Unfortunately, I was wrong.I know that those who do not suffer from some chronic and debilitating diseases can not fully understand what this entails, but I am always surprised at the level of difficulty that people must understand.Of course, we also have trouble understanding the variation in symptoms and how our level of functioning can vary from one day to the next (even from one hour to the next), but it can be painful on the emotional plane. and to learnNo, I can not fully understand some of the daily suffering and tribulations, for example, a cancer survivor, but that is not why I will downplay or ridicule another.As a child, I remember visiting older parents, retirement homes and hospitals.The nursing profession was the second most important profession among many members of my mother’s family.I even remember a teenager sitting in our room reading (with great enthusiasm) our medical encyclopedias.The most important thing for me was that my mother and my grandmother had explained to me the impact of the disease on the person, focusing on the person in the first place.The meeting with those who do not feel emotion towards others leaves me stunned.Yes, I guess I’m quick to judge them, as they judge others.I realize that everyone does not react in the same way to diseases.Some may even react with fear and naivety.The most difficult factor for many of us is probably listening to the closest, making rash comments.Suddenly, we must defend ourselves. It is difficult to manage, especially if we are still struggling with internal conflicts related to our health situation.Why do many believe that self-control or the will can cure us miraculously?Why is this particular illness perceived by some as self-provoked?When a person lacks empathy and insensitive comments, it makes me want to live my life for a single day.They would kiss the ground and would be grateful to return then to their normal body.I have no choice but to continue.


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