I learned a lot about fibromyalgia.
Some things I want I never know, while others have made me a better person.
Here are five things I learned:
1. It is acceptable to say “no”.
I have spent most of my life trying to please everyone, so I rarely use the word “No”.
Now, it seems to be the only answer to all the questions they ask me.
Say no, it was something I hated to do.
I felt like I was leaving people.
Learning to say without feeling guilty was difficult.
I realized that my body does not allow me to do what I want.
It’s not my fault and I should not feel guilty.
I am a volunteer and I do not participate in events or projects because I can not always fulfill my obligations.
I hate to cancel at the last minute, but sometimes it is necessary.
I have spoken with my family and friends so that they understand that there are times when I can not do what is expected due to my health.
If you do not understand, it’s your problem, not mine.
2. Not all doctors know what they are doing.
Doctors are ordinary people.
They make mistakes. They do not know everything.
They have bad days, and sometimes they make decisions that they should not make.
If I think that any health professional does not understand what I say or do not listen, I go there.
It’s time for a new doctor. Getting a second or even a third opinion is not a bad thing.
If I do not feel well, I’m going somewhere else.
My health depends on being well informed and on the doctors taking the time to listen.
3. Listen to your body.
I hate to admit it, but I felt part of my pain and suffering.
I did not listen to my body when I should have it.
If I have a lot of pain, now I rest. I do not push myself like I did when I was younger.
Being in harmony with your body is one of the best ways to know when a crisis is going to happen. I have warning signs that I am looking for.
Headaches and shoulders are often the first indicators that a crisis is just around the corner.
I can not stop it, but I can be prepared.
4. I found out who my true friends are.
I lost friends and family because of my illness.
I learned the hard way that I really care.
I cut some people, because being close to them was bad for my health.
Why do I want to submit to negativity and accusations?
I prefer the people who build me, not the ones who knocked me down.
5. I’m not alone.
And you neither. When I started having symptoms, computers and the Internet did not exist.
Now we have the world within our reach.
Online support groups are a source of friendship and love.
There are so many people who feel like me in the world … Now, I have friends to whom I can express my feelings, I find purification.
I appreciate the friends I made online.
I met incredible warriors of fibromyalgia, who taught me more about this disease and also showed me that I still care.
My illness does not define me, but it changed my life so I could not imagine it.
Take the time to think what fibromyalgia has taught me has given me a new appreciation of life.
Seeing how I’ve evolved over the years is not as depressing as I thought.
Even though I was suffering, I am physically and emotionally stronger because of that.