Nick Demos, producer and director of the Tony Award, has a mission: he wants to make the diagnosis, the treatment and the consequences of the world’s fibromyalgia awareness. He is personally affected by fibromyalgia: his mother, a woman living with fibromyalgia, she found a lack of pain relief, social ramifications and some answers. He is on a mission to discover the experiences of other people living with fibromyalgia, including people in general do not think of having chronic pain syndrome, including a young athlete. According to him, it is important to bring to the forefront fibromyalgia in the hope of getting answers.
“We asked each person interviewed for this film,” What is fibromyalgia? “The answer is never consistent, and for those who do not, there is a lack of urgency to find the answer. “
According to Demos, their findings to date indicate that people with fibromyalgia are subject to a broken health care system, and demographics such as access to education and socio-economic factors come into play, according to the national report of pain. In his film, talk to people of different backgrounds, ethnicities and socio-economic groups, but find common themes for all participants, he says.
“The diseases that no one sees, even more diseases that could trigger or be triggered by all these conditions that are really fatal. Fibromyalgia still need the spotlight because will not kill you in the technical sense. But the community will tell you how Fibromyalgia Syndrome can get worse if they are not empathy, education for life and community support has already received all their deadly counterparts. It remains a controversial issue, although millions show that the disease is real and widespread.
The film is scheduled for release in 2017 and will be featured in several films next year, says Demos. So far, the film has been entirely based on donations, most often in fibromyalgia patients or organized groups to educate people about fibromyalgia. The syndrome has been described as an “avoidance disease” as a body of chronic pain. It is characterized by chronic pain, the whole body, headaches, sleep disturbances and mood swings. The fatigue associated with fibromyalgia can be debilitating and, and leads to the difficulty of distinguishing Fibromyalgia Chronic Fatigue Syndrome.
It is not a disease that causes life-threatening or physical malformations, although patients with fibromyalgia and other chronic pain disorders may be more likely to commit suicide. People living with Fibromyalgia described as heavy rainfall: relationship difficulties, difficulty in completing many jobs, financial instability, and depressed mood. Although no one knows the exact cause of fibromyalgia, some researchers believe that it is due to the levels of chemicals in the brain that can be genetic, as it seems to work in families. Women are more likely to be affected, although the syndrome can also affect men.
Although treatments are available, such as Lyrica and Cymbalta medications, no medication seems to be the answer for everyone, and can take a lot of time and trial and error to find out what medications work for patients and the dose needed. Taking care of yourself is an important part of treating the symptoms of fibromyalgia, such as getting enough rest, eating nutritious foods and avoiding circumstances that cause excessive stress or emotional energy. This can be a challenge for many people because of the obligations of life and the symptoms that surround the illness itself.
Many people with the disorder feel isolated and misunderstood because the syndrome is invisible to others and is not well understood by everyone, including many doctors. Demos hopes his film can educate people and educate people about this debilitating syndrome.